Overview on patient organizations across Europe
Patient Organizations in Europe
Transnational
|
CML Advocates network |
|---|
|
Website: http://www.cmladvocates.net E-mail: info@cmladvocates.net |
Austria
|
Myelom- und Lymphomhilfe Österreich |
|---|
|
Website: http://www.lymphomhilfe.at/ E-mail: info@myelom.at Contact person: Prim. Univ. Prof. Dr. Heinz Ludwig Adress: Satzgasse 5, 7052 Müllendorf, Austria Phone: 0043 (0) 1 / 49150 – 2101 E-mail: heinz.ludwig@myelom.at |
Bulgaria
|
Association of People Suffering from Chronic Myeloid Leukemia |
|---|
|
A patient organization in Bulgaria for CML patients. Website: http://www.cml.zdrave.info/ Phone: 0899 123 999, 0888 202 145 E-mail: hml@abv.bg |
Croatia
|
Croatian Association of Leukemia and Lymphoma Patients |
|---|
|
HULL Zagreb Website: http://www.hull.hr Contact person: Krunoslav Cigoj Address: Trg hrvatskih velikana 2/II, 10 000 Zagreb, Croatia Phone: +385 1 48 73 561 Mobile: +385 91-4873 561 E-mail: hull@zg.t-com.hr Contact person: Boris Labar, MD, PhD, Associate Professor Address: Clinical Hospital Center Zagreb, Dept. of Medicine, Div. of Hematology, Kispaticeva 12, HR-10000, Zagreb, Croatia Phone: +385 1 23 88 644 Fax: +385 1 24 21 892 E-mail: boris.labar@inet.hr |
Czech Republic
|
Lymfom Help |
|---|
|
Patient organization in Czech Republic. Website: http://www.lymfomhelp.cz/ Adress: LYMFOM HELP, o.s., Arménská 1374/14, Praha 10 – Vršovice Phone: +420 724 370 065 E-mail: info@lymfomhelp.cz/ |
|
Diagnoza CML |
|---|
|
Patient organizsation for CML patients, located in the Czech Republic Website: http://diagnoza-cml.cz/ Contact person: Jana Pelouchová (předsedkyně sdružení) Adress: ÚHKT, U Nemocnice 1, 128 20 Praha 2, Czech republic Telefon: 728 308 360 E-mail: janapel@centrum.cz |
Estonia
|
Estonian Leukaemia Patients Society |
|---|
|
Eesti Leukeemiahaigete Liit. Language: estonian Website: www.leukeemia.ee Adress: Tallinna 22, 71001 Viljandi, postkast 9, Estonia E-mail: info@leukeemia.ee |
Europe
|
European Cancer Patient Coalition |
|---|
|
Website: http://www.ecpc-online.org Adress: ECPC Head Office, Oosterhaven 29, 1671 AB Medemblik, The Netherlands Phone: +31 30 296 74 66 Fax: +31 30 296 74 39 E-mail: info@ecpc-online.org Executive Director: Patricia Huijbregts E-mail: patricia.huijbregts@ecpc-online.org Administrator: Daniëlle Brouwer E-mail: danielle.brouwer@ecpc-online.org Head of EU Policy: Hildrun Sundseth Adress: Dreve de Nivelles, 99, 1150 Brussels, Belgium Phone: +32 2 772 6165 Fax: +32 2 772 6135 E-mail: hildrun.sundseth@ecpc-online.org |
France
|
Association Laurette Fugain |
|---|
|
Information from and for leukemian patients in France. Website: http://www.laurettefugain.org/ Adress: Lot n° 1674 - 101 rue de Sèvres, 75279 PARIS cedex 06 E-mail: joycecoquinos@laurettefugain.org |
|
France Federation Leucemie Espoir |
|---|
|
La Fédération Leucémie Espoir (FLE) est une association de Vie et d’Espoir, tournée vers l’avenir pour apporter aide morale, matérielle et soutient aux malades et à leur famille. Website: http://www.leucemie-espoir.org/ E-mail: a.civray@leucemie-espoir.org |
|
France Lymphome Espoir |
|---|
|
Patient organisation located in France Website: http://www.francelymphomeespoir.fr/ Adress: 1 avenue Claude Vellefaux, 75475 Paris cedex 10 - France Phone: 0492031000 E-mail: infos@francelymphomeespoir.fr |
Germany
|
Deutsche Leukämie- und Lymphomhilfe e.V. |
|---|
|
Website: http://www.leukaemie-hilfe.de/ Contact: Ralf Rambach (1. Vorsitzender) Patient Advocat: Dr. med. Ulrike Holtkamp Adress: Thomas-Mann-Straße 40, 53111 Bonn, Germany Phone: +49 (0)228 - 33 88 9 200 Fax: +49 228 33 88 9 222 E-mail: info@leukaemie-hilfe.de |
|
Leukaemie online |
|---|
|
Leukämie-Online e.V. engagiert sich als unabhängige deutschsprachige Wissens- und Kommunikationsdrehscheibe zum Thema Leukämie - von Patienten für Patienten und Angehörige. Das von Leukämiepatienten betriebene Angebot fördert aktive, informierte und selbstbestimmte Patienten durch umfangreiche Informationen über die neuen Möglichkeiten und Chancen in der Behandlung von Leukämie. Website: http://www.leukaemie-online.de/ Contact: Jan Geissler (1. Vorsitzender) Adress: LeukaNET e.V., Am Rothenanger 1b, 85521 Riemerling, Germany E-mail: info@leukaemie-online.de |
Hungary
|
CML es GIST beteg egyesület |
|---|
|
CML and GIST patient’s Association in Hungary. Website: http://www.cmlgist.hu/ Adress: 6800 Hódmezővásárhely, Medgyessy Ferenc u. 6/c. fsz. 6. Phone: 06-20-338-3331 E-mail: cmlgist@cmlgist.hu |
Ireland
|
Lymphoma Support Ireland |
|---|
|
Lymphoma Support Ireland (LSI) was formed in 1987, to provide information, advice and emotional support, for people with Hodgkin Lymphoma (Hodgkin Disease) (HD) and Non Hodgkin Lymphoma (NHL) and their carers, located in Ireland. Website: http://www.lymphoma.ie Adress: c/o Irish Cancer Society, 43/45 Northumberland Road Dublin 4 Phone: 01-2310 500 E-mail: info@lymphoma.ie |
Italy
|
Associazione Italiana contro le Leucemie-Linfomi e Mieloma |
|---|
|
Sono a vostra disposizione anche i reportage degli ultimi convegni medici internazionali. Gli argomenti trattati, nonostante la loro complessità, sono esposti con un linguaggio semplice e chiaro. Website: http://www.ail.it/ Adress: Via Casilina 5, 00182 Roma, Italia Phone: +39 06 7038601 E-mail: ailpazienti@ail.it |
Latvia
|
Limfomas pacientu atbalsta organizacija |
|---|
|
Limfomas pacientu atbalsta biedrību šobrīd droši var saukt par jaunu cilvēku- domubiedru grupu, tāpēc, iespējams, sanāksmes norit brīvā un nepiespiestā gaisotnē, bet darāmie darbi veicas viegli un ātri. Katra tikšanās reize ir vērtīga ikvienam klātesošajam – vai tā būtu tikšanās ar speciālistiem un atbildes uz jautājumiem, kam neatliek laika ikdienā, vai domu un pieredzes apmaiņa savā starpā - „Kā Tev bija? ”, „Ko man darīt šajā situācijā? ”, „Tev taču pienākas atvieglojumi!”, vai arī vienkārši pamatīga C vitamīna deva smieklu veidā. Address: The Lymphoma Patient Support Association, Linezera street 6, Riga, LV-1006 Phone: 00371 7 103 202 E-mail: info@limfoma.lv |
|
Leikemijas slimnieku atbalsta biedriba |
|---|
|
Association of Support for Leukemia Patients. Language: Latvian Website: http://www.leikemija.lv/ Adress: Leikēmijas slimnieku atbalsta biedrība, a/k 250, Rīga, LV- 1050 E-mail: leikemijasbiedriba@one.lv |
Netherlands
|
Stichting Zeldzame Bloedziekten |
|---|
|
Wij zijn een stichting die, onze naam geeft dit al aan, patiënten met zeldzame bloedziekten op allerlei gebieden probeert van dienst te zijn. Daarom hebben verschillende bloedziektengroepen hun activiteiten gebundeld in een domeinnaam www.bloedziekten.nl waarbij ze proberen gebruik te maken van elkaars synergie. Website: http://www.bloedziekten.nl Adress: Postbus 83, 1670 AB Medemblik E-mail: info@bloedziekten.nl |
Portugal
|
Associacao Portuguesa contra a Leucemia |
|---|
|
Patient organization located in Portugal. Website: http://www.apcl.pt Adress: Rua Nunes Claro nº8C., 1200-209 Lisboa Phone: 21 342 2204/05 Fax: 21 342 2206 E-mail: geral@apcl.pt |
|
Portuguese Leukemia and Lymphoma Association |
|---|
|
Patient organization located in Portugal Website: http://www.apll.org/teste/ Adress: Estrada Interior da Circunvalação, 6657, salas 90 e 91, 4200-177 Porto, Portugal Phone: 914 349 313 E-mail: geral@apll.org |
Slovenia
|
Drustvo bolnikov z limfomom |
|---|
|
Spletna stran www.limfom.si, ki ste jo ravnokar odprli, je rezultat nekaj mesečnega dela, ki pa še zdaleč ni končano. Čeprav ogrodje spletne strani, ki so ga naredili v spletni agenciji Sonce.net, že stoji, pa nas čaka še veliko dela s pripravljanjem vsebin. Zato lahko rečem, da bo vsak ted. Website: http://www.limfom.si E-mail: info@limfom.si |
Spain
|
Asociacion Espanola de Afectados por Linfomas, AEAL |
|---|
|
AEAL es una asociación sin ánimo de lucro que se financia con las aportaciones de los socios y donaciones privadas. Ésta página web está financiada íntegramente con los fondos de la asociación. Website: http://www.aeal.es/ Adress: Santa Hortensia 15, Office-K - 28002 Madrid Phone: 901 220 110 / 91 563 18 01 E-mail: contacta@aeal.es |
Switzerland
|
Stiftung zur Förderung der Knochenmarktransplantation (SFK) |
|---|
|
Die SFK wurde 1994 gegründet durch eine Privatinitiative, aus eigener Betroffenheit. Sie ist von sämtlichen Steuern befreit und steht ehrenamtlich, praktisch rund um die Uhr, mit ihren Hilfeleistungen an Leukämie erkrankten jungen Menschen, Kindern und ihren Familien mit Rat und Tat zur Seite. Website: http://www.knochenmark.ch/ Adress: Vor der Rainholzstr. 3, 8123 Ebmatingen, Switzerland Phone: 044 982 1212 E-mail: info@knochenmark.ch |
|
Schweizerische Patientenorganisation für : ho/noho |
|---|
|
Die Selbsthilfegruppe mit Sitz in Basel, begleitet Erwachsene Personen mit malignen Lymphomen und deren Angehörige, ist Mitglied der Lymphoma Coalition, einem internationalen Netzwerk von Lymphompatientengruppen, sowie der Deutschen Leukämie- und Lymphomhilfe e.V., Bonn Website: http://www.lymphome.ch/ Adress: ho/noho - Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige, Rosmarie Pfau, Weidenweg 39, CH-4147 Aesch BL Phone: 0041 61 421 09 27 E-mail: info@lymphome.ch |
UK
|
CML Support UK |
|---|
|
This site is published and maintained by CML patients and carers, for the use of CML patients, their families and carers. Our aim is to provide support and updated information regarding the best available therapy for CML patients in the UK and Europe, although we warmly welcome membership from all CML patients worldwide. Website: http://www.cmlsupport.org.uk/ Adress: PO Box 56213, London N4 4WF, United Kingdom E-mail: cmlsupportgroup@gmail.com |
|
Leukaemia CARE |
|---|
|
Leukaemia CARE exists to provide vital care and support to all those whose lives are affected by leukaemia, lymphoma and the allied blood disorders. Our work extends to the welfare of families and carers, as well as that of patients themselves. Quite simply... 'supporting a quality of life'. Website: http://www.leukaemiacare.org.uk/1/home.html Adress: One Birch Court, Blackpole East, Worcester. WR3 8SG UK Phone: 01905 755977 CARE Line: 0800 169 6680 E-mail: care@leukaemiacare.org.uk |
|
Lymphoma Association |
|---|
|
The Lymphoma Association provides emotional support and information on a range of issues to anyone with lymphatic cancer and to their families, carers and friends. Website: http://www.lymphomas.org.uk/ Adress: The Lymphoma Association , PO Box 386, Aylesbury, Bucks, HP20 2GA. Phone: 0808 808 5555 E-mail: information@lymphomas.org.uk |