Study Groups of Project 8: Myelodysplastic syndromes (MDS)

MDS trial groups willing to cooperate within framework of LeukemiaNet

  • Budapest MDS group
  • EBMT MDS subcommittee, Prof. de Witte (http://www.ebmt.org/)
  • EORTC, Prof. de Witte (http://www.eortc.be/)
  • German MDS study group, Prof. Aul, Prof. Ganser
  • GFM group (Avicenne) Prof. Fenaux
  • HOVON (Dutch haemato-oncology association) (http://www.hovon.nl/)
  • PETHEMA (Spanish GETH MDS group), Prof. Sanz (http://www.pethema.org/)
  • MDS-Israel Group (MDS-IG)
  • National (UK) Cancer Group, Hem. Malignancies, Prof. Bowen
  • Nordic MDS group, Prof. Hellström (http://www.nordicmds.org/)
  • UK MDS Forum Clinical Trials Group, Prof. Bowen

Possible groups to be added:

Pharmaceutical companies active in MDS and willing to cooperate with LeukemiaNet

Celgene (http://www.celgene.com/)
Pharmion (http://www.pharmion.com/)
Amgen (http://www.amgen.com/)
Roche (http://www.roche.com/)
Novartis (http://www.novartis.com/)
Apotex (http://www.apotex.com/)
Chugai (http://www.chugai-pharm.co.jp/hc/chugai_top_en.jsp;jsessionid=GYS25FHCKM0XCCSSUIHCFEQ)
CTI
Genzyme, ATG (location Sangstet, Lyon) (http://www.genzyme.com/)

Name of the study group
 Groupe Francais des Myelodysplasies
Disease(s)
 MDS classified according to FAB or WHO classifications
Leader(s) of the study group
 Pr Pierre FENAUX
Hopital Avicenne- Service d'Hematologie
125 rue de Stalingrad
93009 Bobigny
France
Tel : 00 33 (0)1 48 95 70 50
Fax : 00 33 (0)1 48 95 70 58/59
E-mail : pierre.fenaux@avc.ap-hop-paris.fr
Website
 http://www.gfmgroup.org/
Studies
  • GFM-EPO-ATRA-2004 (Epoetin Beta and all trans retinoic acid)
  • THAL-SMD-200 (Thalidomid)
  • (for shortprotocols, see studies)
Contact persons
 Pr Pierre FENAUX
Hopital Avicenne- Service d'Hematologie
125 rue de Stalingrad
93009 Bobigny
France
Tel : 00 33 (0)1 48 95 70 50
Fax : 00 33 (0)1 48 95 70 58/59
E-mail : pierre.fenaux@avc.ap-hop-paris.fr

Pr François DREYFUS
Service d'Hematologie
Hopital Cochin AP-HP
27 rue du Faubourg Saint Jacques
75014 Paris - France
Tel : 00 33 (0)1 58 41 21 20
Fax : 00 33 (0)1 58 41 19 95
E-mail : francois.dreyfus@cch.ap-hop-paris.fr

Sandrine Vaultier
Coordination GFM
Service d'Hematologie
Hopital Cochin AP-HP
27 rue du Faubourg Saint Jacques
75014 Paris - France
Tel : 00 33 (0)1 58 41 20 90
Fax : 00 33 (0)1 58 41 29 46
E-mail : sandrine.vaultier@cch.ap-hop-paris.fr
Diagnostic Labs
Name of the study group
 The Budapest MDS study group
Disease(s)
 MDS
Leader(s) of the study group
 Judit Várkonyi, MD, PhD
e-mail: quitvar@axelero.hu
FAX/phone: (361)275-24-20
address: Kútvölgyi út 4.
Budapest, 1125
Hungary
Website
Studies
 metabl. enzyme plymorphism, HFE gene analysis, iron metabolism, copper metabolism studies in MDS
Contact persons
 See above
Diagnostic Labs
 Semmelweis University
3rd Department of Internal Medicine central lab.
Heim Pal Hospital central lab
National Haematological Institute : molecular genetic lab.
National Institute of Epidemiology : lab. of enzymology.
Name of the study group
 German MDS-Study Group
Disease(s)
 MDS
Leader(s) of the study group
 Prof. Dr. A. Ganser, Prof. Dr. C. Aul
Website
 European LeukemiaNet MDS-Group
Studies
 ATG+CSA, 5-Aza-Cytidine, Decitabine, Revlimid, Valproic Acid
Contact persons
 Prof. Dr. A. Ganser (Ganser.Arnold@mh-hannover.de)
Prof. Dr. W.-K. Hofmann (W.K.Hofmann@charite.de)
Prof. Dr. M. Lübbert (Luebbert@mm11.ukl.uni-freiburg.de)
Prof. Dr. C. Aul (Aul@krebs-duisburg.de)
PD Dr. U. Germing (Germing@med.uni-duesseldorf.de)
Diagnostic Labs
 Germing (Düsseldorf)
Hofmann (Berlin)
Haase (Göttingen)
Ganser (Hannover)

Laboratories

application/msword Budapest MDS group labinfo.doc (32KB)
Budapest MDS group labinfo.doc
Semmelweis University, 3rd Department of Internal Medicine, Budapest
application/msword Hofmann_Berlin_labinfo.doc (31KB)
Hofmann_Berlin_labinfo.doc
Department of Hematology and Oncology, Charité, University Hospital Benjamin Franklin, Berlin